Thursday, October 27, 2011

Our baby girl

Today, my wife and I heard the words you never expect nor ever want to hear, "I'm sorry, but your baby has a heart defect." The moment those words left our doctors mouth our joy quickly turned to shock. We sat there crying for a while before it began to sink in. We are faced with a diagnosis that is scary and uncertain. For now, she has been diagnosed with Transposition of the Great Vessels (TGV). Basically, her vessels in her heart are switched so oxygenated blood from the lungs returns back to the lungs instead of to the body. There also may be some chromosomal abnormalities involved. Lydia had an amniocentesis, which is frightening in itself, to see if they can rule out a chromosomal issue or see if it's just a heart condition.

We are praying for a miracle. First that our daughter doesn't have any chromosome problems and that her valves are healed. We find out on Tuesday if there are any chromosome issues. The doctor told us that best case scenario we deliver our daughter and she goes into open heart surgery to have her valves switched. Fortunately, the prognosis for normal lives after surgery is high. We hold on to the truth that our God heals, redeems, and restores here and now. We ask for your prayers for our daughter, that she would be fully healed and that He would give us a peace that surpasses all understanding. Our love for our little miracle baby is only growing and we thank you, our family, for loving her with us.

Love, Jon & Lydia Rosene