Monday, November 14, 2011

The Diagnosis

After much anticipation we just got back home from our first visit with Charlotte's pediatric cardiologist.

Amazingly, we started off our visit by praying with our doctor. What a breath of fresh air that was. He's a believer and is part of the church our church planted from. Crazy, huh? God works in such incredibly detailed ways. We had an immediate connection with him and could not be more blessed with such an amazing man of God and an incredible doctor to walk with in this journey.

After a lengthy echocardiogram he diagnosed our little girl with 'simple' d-Transposition of the Great Arteries. "Simple," meaning there are no other heart defects like holes or shunts that were found.

So, what this means is that she will have open heart surgery approximately 3 to 7 days after birth to switch the arteries. If all goes well, we would be able to take her home between a week and a month after surgery. The prognosis for a healthy and normal life is very high, around 95%. She will have to be monitored the rest of her life, but we are obviously very relieved by the high success rate. We are so blessed with the technology and care we are offered here. For those that are wondering, we are due in the middle of March.

We are still going through many emotions, but the most profound one is a feeling of peace. Even our doctor said that he felt an incredible amount of peace in meeting with us. He also said that this was the best appointment he has ever had in delivering this kind of news to parents. God is sustaining us, and His Spirit is comforting us in ways we don't even understand. We know and feel His nearness to us and our little miracle. He is good, all the time.

Even after her diagnosis our doctor prayed for us before we left. He prayed that our little girl would be healed. We still hope and pray in that thin space where Heaven meets earth that brings miracles and healing here and now. Please keep praying for our little girl and throughout the rest of this journey with us. We couldn't do this without all of you, even those we haven't even met yet.

Thank you.

We will give more updates as they come.

Much Love,

Jon and Lydia
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14 comments:

  1. UnknownNovember 14, 2011 at 5:08 PM

    Great news this, Jon and Lydia. What struck me in reading your blog was that you are both anointed with God's peace that confounds all human understanding. So, I rejoice with you that God is good to you through this hour.

    V

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  2. JOEYA™November 14, 2011 at 5:28 PM

    Amazing News

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  3. cmesign4uNovember 14, 2011 at 5:32 PM

    So happy for all three of you...Praise God you have a Dr. you can pray with! Praising God and will continue to pray for all of you.
    Love & Hugs,
    Yvonne Flynn : )

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  4. DeEttNovember 14, 2011 at 5:42 PM

    This is Joey Altobelli's wife, DeEtt. If you didn't know, I am a NICU nurse and see these sort of diagnosis' on a usual basis. I was wondering who your Cardiologist is? and where you are delivering Charlotte? I work @ Miller Children's Hospital Long Beach. I am so glad to hear how prepared you two are and how God has given you peace that Charlotte is in His healing hands.

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  5. ElizabethNovember 14, 2011 at 5:58 PM

    LOVE

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  6. The Rosene'sNovember 14, 2011 at 6:02 PM

    Hey DeEtt, thank you. A few people from our church know him. His name is Dr. Loo. We will be delivering out of Kaiser Sunset but the surgery will be at Children's Hospital Los Angeles.

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  7. teachingkariNovember 14, 2011 at 6:37 PM

    Such great news from what must have been a completely scary day of anticipation. So glad to hear this... Will keep praying.

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  8. MeNovember 14, 2011 at 7:25 PM

    That peace would continue to be the most profound emotion during this time. Love you guys.

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  9. elise.anaNovember 14, 2011 at 7:42 PM

    such amazing news!

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  10. DeEttNovember 14, 2011 at 9:19 PM

    I have not heard of Dr. Loo, but I do know that CHLA is known to be the best hospital in Ca for an infant cardiac surgeries. Charlotte will be well taken care of. If you have any questions, feel free to ask.

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  11. AudraNovember 14, 2011 at 10:41 PM

    Wow, we worship an AMAZING God. So happy for this news - the connection with the doc, the high success rate and your feeling of peace. Prayers will continue to come your way from Indiana and New Jersey as our family joins us in lifting your family up.
    <3 Doug & Audra

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  12. myjourneyNovember 14, 2011 at 10:44 PM

    Dear Jon and Lydia,
    I too have experienced this peace as I walked through my cancer journey this last year. We serve a very amazing God, and He is faithful to walk beside us no matter what we face in this earthly life. I will pray the Lord will continue to sustain you both, and that He will heal Charlette in His perfect time!

    Forever grateful in Him,

    Deb Ringler

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  13. Team ed.November 15, 2011 at 9:46 AM

    Amen!!
    Can't wait to meet little niece Charlotte!

    -Lizzy

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  14. alissaNovember 22, 2011 at 10:14 PM

    So wonderful. Can't wait to meet the little fireball :) xx

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