We celebrated Charlotte's ONE WEEK BIRTHDAY yesterday! Lydia made cupcakes and some of our friends and family brought over food. It was a great way to celebrate our little girl's milestones. We have celebrated every single second that we've had with her. She has forever changed us.
Lydia's over at the hospital with Charlotte and I'm doing some laundry, so I thought I'd update everyone with what's going on.
Charlotte is still doing great. The ONLY issue, and they don't think it's anything right now, but she had a mild fever a day ago, and again this morning. The plan was to transfer her to Kaiser Sunset for a step down recovery to learn feeding, but with this, they are going to keep her at Children's and step her down in their facility for observation. She is still recovering very well, which is why they are planning on taking her out of the CTICU, but they would still like to monitor her status closely. One of the Dr's said that she is doing so well that he really wants to keep a close eye on her so there are no setbacks. So this is more precautionary than something they are worried about.
One of the issues with the fever is that she has a carotid central line in her neck that they haven't been able to remove because they haven't been able to get a line anywhere else. It's heartbreaking to know they had to poke her so many times to try and find another spot. The carotid line is a highly sensitive area and can be very prone to infection, which is why they want it removed. All the cultures so far to check for infection are negative, Praise God. They were able to secure a line on the side of her head (another heartbreaking moment) but they can't draw blood from that site.
All this being said, she still needs lots of prayer and love. She's a fighter and this part of her journey is almost over, she just needs to finish this race strong so we can move on to the next step with our precious angel.
Thank you guys for all the kind words, prayers, and support. Charlotte already has quite the story to tell. Can't wait for you all to meet our little miracle.
Love ALL of you,
Jon
Here is a recent picture of our little girl:
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